Archive for May, 2012

Consenting to Heal

One more thing from my experience with the naturopath. She had me sign a consent to heal form that I actually thought was a pretty great reminder of the role we play in our healing and treatment plan. I’ll share the whole thing, but one thing that gave me pause was agreeing to “acknowledge and rejoice in all improvement in my health.”

I love this and as I read it, I realized I hadn’t really been doing it. I’ve been so concerned about people understanding what I’m going through, that I probably have been focused on the negative rather than the positive. So when my friend asked me how I was doing and told me I was looking a lot healthier, rather than the “yes, but” or “I’m doing OK, but” flustering statements I usually come back with, I said, “You know what, I really am feeling a lot better. I think my treatment is working. It’s not perfect, but the pain is down and my energy is up, so, yes, I’m doing good.”

Here it is in full:

CONSENT TO HEAL

  • I consent to minimize complaining, blaming, irony and sarcasm because I know that they contribute to illness and make it harder to get well.
  • I consent to maximize praise and gratitude by expressing these toward myself and others as I understand that this will help me get well.
  • I consent to minimize all obsessive worrying and concern about anything at all, including my health problems, because this can make it difficult for me to get well.
  • I consent to acknowledge and rejoice in all improvement in my health.
  • I consent to acknowledge all fear of getting well and any gain I get from staying sick so that I can release what hinders my ability to get well.
  • I consent to minimize and eliminate all behavior that undermines or sabotages my healing.
  • I realize that I deserve to be well.

There you go, I hope you got as much out of this simple form as I did. It’s at least food for thought. You can see more notes from my naturopath visit here.

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Notes From My Visit to a Naturopath, MD

My diagnosis (3 months ago, yikes!) led me to do a lot of research on RA and how diet might effect its symptoms and outcomes. From that research, I’d made some diet changes and added several supplements. I went gluten free, I cut way down on red and white meat and caffeine, I majorly boosted my intake of omega-3s – through fish, avocado and supplements. I also added lots of fruits, veggies, turmeric and ginger to my diet. I started taking more supplements daily than just my multi-vitamin, including B12, Calcium/Magnesium, Coenzyme Q10, Omega-3 Fish Oil, and Zyflamend (New Chapter’s version of an anti-inflammatory daily, which is mainly turmeric).

With all of these changes, I began to wonder if I should consult a professional dietician or naturopath. So when a Living Social deal popped up for a respected, certified naturopath who also held an MD, I jumped at the opportunity. I wanted to share a little of what she told me – keep in mind everyone’s different, so don’t take this as professional advice!!

First off, the whole experience was a positive one. I had never been to a naturopath before or used any sort of homeopathic medecine, so to say I was skeptical is possibly an understatement. I did and do, however, firmly believe that diet can be a powerful agent of change and healing in our bodies. She started off by patiently going through my long (novel-sized now, haha) medical history, family history and symptoms. I liked how we weren’t just talking about RA, we talked about other past ailments and current conditions as well.

Though hearing about the drugs I’m on – methotrexate and enbrel – made her twinge a bit, I liked how she didn’t push me to get off these drugs. She said the idea was to use diet, supplements and homeopathic treatments to get my body ready for when I would get off or cut down on the drugs, so that at that point symptoms would not reoccur. She said she just didn’t want to see me on these drugs forever, and I couldn’t agree more.

She believes that the root of many autoimmune diseases can be found in the gut, and that healing the gut can heal the root cause of the disease, instead of just treating the symptoms. In the end, she agreed with most of what I was doing, but made some tweaks to my diet/supplement plan.

She agreed that gluten-free is the way to go, but also recommended cutting dairy. I guess the idea is that you cut likely allergens to see if you feel better. She recommended a basic gluten-free, casein-free anti-inflammatory diet made up of 40% carbs, 30% protein and 30% healthy fats. She encouraged me to mix up the foods I was eating as much as possible, and also encouraged me to add more protein, even adding red and white meat back into the mix if I wanted.

Two big, but difficult suggestions were cutting caffeine and refined sugar. I’d already cut way back on my coffee drinking, but cutting it out completely? Don’t think that’s for me. Also, I don’t drink sodas or generally do a lot of refined sugar, but cutting it out of my diet completely seems near impossible because I tend to eat out a lot.

Another biggie was to increase water intake. She recommended drinking half my body weight in water every day and adding electrolytes, like Emergen-C or coconut water, to vary it and boost my body’s absorption.

As far as the supplements go, she took me off B12, saying that my Folic Acid was doing a very similar thing and she didn’t want me to have too much of a good thing (apparently a sign of too much of this particular good thing is numbness or tingling up your arms). She switched my Omega-3 fish oil from the supplements to cold-pressed cod liver oil and majorly boosted the amount I was taking. It’s more expensive, but I guess it’s way more effective. She kept me on CoQ10 (100-200 mg/day for energy and antioxidant support), Zyflamend or Turmeric (as a natural inflammatory, she likes the brand Boswelya Plus, but I haven’t tried it yet), and the Calcium/Magnesium (600mg calcium, 300-500mg magnesium/day), but she also added Vitamin D (6,000IU/day) and daily probiotics. She also suggested 1,000-2,000mg/day of Vitamin C for immune support – this has been easy with Emergen-C packets.

On top of all this, she has me on three homeopathic remedies twice daily to heal my intestines and liver, and Ribes Nigrum twice a day for adrenal and energy support and anti-inflammatory properties.

I was feeling overwhelmed at the end of the visit, but motivated to try it. I’ve been doing a mega-smoothie each morning with the fish oil, probiotics, and brown rice protein added (recipes in another post!). I have little gluten free snacks to get me through the day – nuts, fruit, pretzels (GF, of course), and try to do something pretty healthy for lunch, like a big salad with fish protein. Dinner has been a bit of a free for all, but I’m trying to come up with new recipes and welcome any suggestions.

It’s only been a few days on the diet, but I gotta admit, I’m feeling pretty good. It’s nice to have some ‘medical’ validation that there’s a reason to be avoiding gluten and other things (I think my friends either think I’ve turned into the most pretentious eater alive, or I’m trying to lose weight). It’s also good to feel a certain amount of control over the disease. I know I can’t control a lot of things with RA – the drugs, the bad days – but I can control my diet and what I’m putting in my system to help fight it. And the pain and symptoms have been pretty minimal lately, who knows if it’s the diet or the drugs or both, but I’m not complaining! I even ran a 10K on Memorial Day, relatively pain free.

So there you have it, my first visit to a naturopath.

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Gluten Free – More Than a Fad Diet

Gluten Free – More Than a Fad Diet

This article affirms what many of us know, gluten free is more than a fad diet. Though I’m not sure being on a gluten free diet has eased my RA symptoms, I’ve had friends with Celiac’s and gluten intolerance truly benefit from this diet.

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It’s Totally RAD (I’m weighing in on the RA vs. RAD debate)

I thought you all were more than due for an explanation as to why I prefer Rheumatoid Autoimmune Disease to Rheumatoid Arthritis. Everyone with RA can empathize with that awkward moment when you first tell people about your disease. The reactions for me generally vary from “You’re too young to have arthritis.” to “Arthritis isn’t that big of a deal.” to “What’s that?”.

Even the people that are sensitive to the disease or maybe have even heard of it have misconceptions. They don’t know that the disease is systemic, as in effecting more than just the joints. If they do have a concept of RA, they usually immediately jump to the images they’ve seen of deformed hands. “You have that!? But you look fine.”

I don’t need everyone to understand my disease. And I don’t need their sympathy. But I’m a 29-year-old woman and I hate the stigma of the word ‘arthritis.’ Maybe it’s superficial and hyper-sensitive of me. Maybe it’s because I’m still fresh to the world of RA. Whatever it is, I much prefer Rheumatoid Autoimmune Disease.

You say Rheumatoid Arthritis, and people’s minds turn off. “Arthritis. I know what that is. My grandma has it.” You say Rheumatoid Autoimmune Disease and people just might hear you out and take you more seriously.

Also, I think that RAD just generally encompasses the disease that I am experiencing better. It’s not just the joints. On many bad days, the joints are the least of my concerns. It’s the fatigue and insomnia and even GI problems. It’s the full systemic issues of RA that make it so complex and difficult to deal with.

So there you go. I know they’re just words and, ask anyone, I normally hate arguing semantics, but this one has pushed a button.

Oh, and RAD just reminds me of neon and the ’80s, and that makes me smile. What disease name can do that?

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New Drug to Head to FDA Approval Panal

U.S. panel seen backing Pfizer’s arthritis drug hope

Like any new drug, reading about this makes me both optimistic and wary. The idea of a pill drug to replace injectables is very appealing though! Check out the story here.

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Why Nurses Matter

I’ve had two more reactions to Enbrel injections. The injection itself usually goes fine (except for this last time when the blue button wouldn’t push down again and it seemed like the liquid went in too fast…), but then the injection site starts to itch and turns into a big red welt that’s both itchy and painful.

The last time it happened I contacted my doctor. I’m lucky enough to have a doctor who is available via email. This is great and I applaud him for answering my questions so quickly. The only problem is, along with the promptness, he can be very abrupt. Sometimes that stings.

His reply to my question about the welts and whether or not I should be concerned or if he had advice was a very short, “…it’s pretty common. Hydrocortisone is fine to use. Let me know if you want to switch drugs.”

No I don’t want to switch. Not if this is starting to work (Is it? I’m not always sure.). The last thing I want is to start treatment again and get used to another drug. So I took it as a sort of “stop complaining” message.

About an hour later, the nurse from my doctor’s office called and said that she knew the doctor had been in touch already, but she had some thoughts. She told me that it could be that I was applying too much pressure to the pen. She suggested holding it more lightly.

It wasn’t much and I’m not sure it’ll work, but man I loved her in that moment. She took the time to realize that I might be looking for more help than he’d given and to offer real, heartfelt, personal advice.

Thank you to her and all the kind nurses out there. We don’t thank you guys enough.

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