Archive for April, 2013

Great Attitude, Great Advice

11 Things My Son Taught Me about Life & Business
http://www.sugarrae.com/random/11-things-my-son-taught-me-about-life-and-business/

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$5.6 for RA/Lupus Research

$5.6 for RA/Lupus Research

Hurray! I love reading that there is new research going on!

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Patience Heals

There’s been times on this blog where I’ve complained or wondered about the efficacy of acupuncture. I wanted to share the very positive experience with acupuncture I had this week.

When I first took a chance on acupuncture, I went to an eastern medicine school close to me. They were VERY affordable, at only $25 for acupuncture or herbal recommendations. The only problem was, it was never relaxing.

The students weren’t always sure of themselves and the teachers who answered their questions were teaching more than treating me like a human patient.

And then after they stuck me with needles, they would leave and I could overhear them chatting with fellow students in the hallway. It was not relaxing at all and, being new to acupuncture, I would have panic attacks when they left me in the room.

I gave this clinic about four chances and then pretty much swore off acupuncture. Then my friends started recommending an acquaintance of mine who had just started her own practice. They weren’t just recommending, they were raving.

So despite the hour drive and much higher cost, I decided to go see her. I bought a five session package to save money. So there I was, committing once again to something I’d tried and given up on. I’m so glad I did.

Off the bat, the experience was more caring and relaxing. She took time to go over every bit of my history, from medical to personal, in a very human (read: not just doctor to patient, mhmm, mhmm) kind of way. I found that leaving her sessions would at the very least put me in a better mood. I couldn’t say with certainty that it was helping my RA though.

And then, last week, something very miraculous happened. It had been about three weeks since my last session with her, and I’d been struggling with joint pain and all over aches and fatigue pretty consistently for about a month. I was bordering devastation because I had been feeling so good before and during my March trip to Spain.

Not to mention, I had consulted with a doctor in March who had given me the go-ahead to get off methotrexate since I was doing so well. My constant pain that seemed to getting worse and worse was making me really nervous about getting off MTX, so I haven’t done it yet.

So last week I go to her and tell her the positives – my digestion’s been great, my wrist is no longer shooting nerve pain up my hand – and the negatives – I’m stressed and freaked out, achy all over with pain points in my joints, and struggling with fatigue.

We chatted and she stuck me with needles and let me relax (yes, actually relax) for about thirty minutes. By the time she took the needles outĀ  and I left her office, I felt like a new woman. I wasn’t in pain.

Over the last couple of days, I’ve had mild pain in specific joints – my left wrist, my right foot. But that is more par for the course and hasn’t stopped me from signing on for training for a sprint triathlon or running a 15k benefit run for Boston yesterday. The mysterious, horrible, unrelenting all over achiness has lifted.

I don’t know if it was actually being able to relax, or venting my problems, or the needles, but I’m so happy I could kiss her. šŸ™‚ I settled for sending her this card:

I have now decided to buy 10 more acupuncture sessions with her. I hope each one is as magnificent.

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Eww…Wow.

It’s gross, but, then again, so are autoimmune diseases…

BBC – Future – Health – Worm therapy: Why parasites may be good for you
http://www.bbc.com/future/story/20130422-feeling-ill-swallow-a-parasite/4

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Beyond Words

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At the Barcelona Marathon. As a fellow runner, as a human, my thoughts go out to those affected by the Boston Marathon blasts.

I’m sporting my Barcelona marathon tee in support of the victims of the Boston Marathon bombings and the running community in general.

I watched the tragedy unfold yesterday and was absolutely speechless, horrified, and angry.

Who would do this? Why? And why are they so cowardly, they haven’t come forward to claim responsibility yet? What did they hope to gain if it wasn’t credit for the attacks?

Don’t they realize that runners will not be terrorized. If I’ve learned anything in my year training for my first marathon, it’s that RUNNERS’ SPIRITS WILL NOT BE BROKEN.

We run to defeat all odds and expectations. We run to stay free. We run.

For those who died or lost limbs, my thoughts are with you. This is such a terrible tragedy. You have the support of the running community. An international community of people who will not give up.

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Should I Move On?

Dear friends,

For those of you that follow my blog, I am very interested in advice…

As you know, I went to get a second opinion on my rheumatoid arthritis treatment because a family friend’s death illuminated the connection of methotrexate to interstitial lung disease.

Well, I went to a pretty renowned hospital and saw a very nice female (wow, rare!) rheumatologist who is not much older than I am. She was easy to talk to, smart, and, since she works in a research hospital, very up-to-date on the latest RAD research.

And get this, she wants me to try to go off methotrexate and see how I do with just Enbrel. Her reasoning was that a) I have valid concerns about MTX side effects, b) my last two liver tests came back high, and c) why not try it?

Granted, she hasn’t been my doc, so hasn’t seen me before my drug therapy or on bad days (it was a good day when I saw her). But she thought my treatment may be a bit unnecessarily aggressive.

If going off MTX didn’t go well, she talked about putting me on Azathioprine, which I know nothing about, but pulmonologists (lung docs) like better than MTX. Has anyone been on Azathioprine or have thoughts about it?

*It should be said that methotrexate causing interstitial lung disease is quite rare, and in many cases treatable. I am just a little sensitive about this because I had severe interstitial lung disease as a child. My lung doc says that I’m not necessarily at more risk than the average RA patient for developing ILD, but I’d like to play it safe.

But, of course, I’d also like my treatment to work.

I’m scared to death of getting off MTX when my current drug therapy seems to be working pretty well.

I also don’t want to be on MTX for the rest of my life…

My current doc brought me down to seven pills per week from 10 because of my liver, but I know he’d rather see me stay on the MTX.

I feel as though I have to decide on both which doc to go with (you can’t have two rheumatologists, apparently; they’ll just disagree on everything) and which treatment plan. And I feel like I have to decide by Sunday, which is methotrexate day for me.

Finally, how do you even break up with a doc who’s been kind, effective, and accessible? And should I? The new hospital offers more cutting edge care and is bigger, so my rheumy would be consulting with other rheumatologists and pulmonologists. I can also participate in research there. BUT, it’s further from my house and my new doc may be a little less accessible than my current one.

If anyone has advice on how to choose doctors, break up with doctors, or switch treatment plans, I would really love to hear it.

Thanks,

Angsty RAD blogwriter šŸ˜‰

 

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New Green Monster Smoothie Recipe

New Green Monster Smoothie Recipe

This is my new favorite morning smoothie:

1) A bunch of fresh parsley
2) A handful of kale
3) 1 banana (fresh or frozen)
4) A few inches of cucumber
5) Avocado (half or full)
6) A bit of fresh ginger
7) A teaspoon (or so) of chia seeds
8) For the inflammation challenged…A tablespoon (or so) of liquid fish oil
9) Unsweetened almond milk
10) Agave sweetener as desired
11) Enjoy!!!

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