Archive for June, 2012
Along with a mild flare and a new fun symptom (more on that in a minute), I got a call from the nurse saying that my blood tests flagged my liver function panels as high. For me this means dropping down to four doses of methotrexate per week instead of six and following up with another blood test in a month. This scares me, and is especially bad news to get on a day when your symptoms feel worse than they have in awhile. I don’t want to mess with my meds if their helping. Will my symptoms flare? Will it slow remission progress? So many questions.
Also, there’s this sense of I coulda done more to help my liver while it’s working so hard to process these crazy chemo drugs. I haven’t 100 percent abstained from alcohol (my rheumy said five drinks per week was fine) for example. For those of you on mtx, did you cut alcohol completely? Anything else you’re doing to help your liver?
And then there’s this weird feeling I’ve had all day as if the blood in my arms is burning. Like my arms are on fire from the inside out, especially by my elbows. Has anyone experienced anything like this? Is it a vitamin deficiency, med side effect or RA side effect? Or maybe I’m going crazy. I’ll be asking my rheumy tomorrow, so I’ll let you know what he says.
Despite the burning and flare symptoms, I made myself lift some weights and do some yoga. The distraction was great at least, but now it’s back to burning.
Last weekend I was nonstop – a lots of yoga, a pretty tough hike, a 10K on Memorial Day, tons of walking. I felt REALLY GOOD.
I think I’m paying for it now though. My symptoms began flaring a bit Tuesday and I thought it was just recovery from the 10K. Now however, I’m sitting at my computer, putting off starting my day because I have some morning stiffness I haven’t had in a long while and my wrists are hurting again, ugh. Not to mention I’ve just been extra tired since Thursday – missing workouts and (trying) to go to bed early.
I know it shouldn’t, but whenever my pain feels more acute than normal, my mind goes into what I call “spiral of doom” thinking. Oh my god, the meds aren’t working… Permanent damage is happening. Right. Now. I’ll be disabled. I’ll be in a wheelchair. I’ll have to quit my job. Blah. Blah. Blah.
I’m trying to catch myself when I get into this thinking and replace it with other thoughts. Having symptoms reappear is totally normal. It doesn’t mean you’re getting worse. It doesn’t change the fact that you’re spending a lot more time feeling better than feeling bad. One bad day or week does not null and void your progress.
I just can’t help but wonder if I caused the flare by pushing myself too hard. It’s frustrating though because when I feel good, I don’t want to slow down or hold back. Anyone have advice for striking that balance?
My Naturopath recommended I make smoothies daily have probiotics, fish oil and protein added.
I’ve done some recipe experimenting, and this one’s pretty good:
- 1 Apple
- Fresh Ginger
- 2 Tablespoons Brown Rice Protein
- 3 Tablespoons Cold-Pressed Cod Liver Oil
- 1 Serving Daily Probiotic (I open the capsules and put the powder in the smoothie)
- Almond Milk
- 3-4 Ice Cubes